Using the Patient Voice: Effectively Engaging Rare Disease Patients for Trials

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Using the Patient Voice: Effectively Engaging Rare Disease Patients for Trials

 Although rare diseases make up a small part of every therapeutic area, clinical trials for rare diseases are beginning to be thought of as their own unique research area. This is mainly due to the distinct objectives and challenges of rare disease clinical trials, finding these ‘niche’, or needle-in-a-haystack patients who are greatly in need of new or novel treatments.

This webinar will provide insights into rare disease patient recruitment and engagement strategies by:

  • Informing how and when to involve patient insights within this strategy
  • Reviewing the important steps to take in order to ensure your trial messaging is patient-centric
  • Explaining how to tailor patient recruitment tactics to engage niche patient populations in a cost-effective manner.

 Watch the Rare Disease Recording

 

Presenters

Danielle Lavieri

Therapeutic Strategy Lead II: Site and Patient Networks

Danielle Lavieri spearheads ClinEdge Rare Disease’s recruitment and retention strategies by working with Sponsors to understand the unique challenges of each study and devise tailored integrated patient recruitment and retention strategies to overcome these hurdles. Utilizing her background in Health Communication and Public Health, Danielle brings a wealth of experience to capture the needs of each patient and study. 

 

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