Rare for a Reason: Reaching the Rare Disease Patient Community

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Rare for a Reason: Reaching the Rare Disease Patient Community

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This webinar was recorded on Thursday, April 4th, 2019. 

More individuals are affected by a rare disease than by cancer in the US, however, treatments for rare diseases are few and far between. One of the challenges of developing new treatments is successfully finding and engaging patients to complete clinical trials in a timely manner. In this webinar, we will be offering insights on how to successfully tackle that issue by introducing tools to understand patient profiles and journeys, and build the protocol and recruitment campaign accordingly, using the right advertising, through the right media, at the right time.

Topics to be covered include:
- What classifies as a rare disease?
- Overcoming challenges in recruitment and retention
- Understanding the patient journey/patient profile 
- Finding the right advertising and outreach platform
- Engaging with patients 
- Partnering with trusted sources
- Strategies to develop effective marketing collateral and campaigns

Access Rare for a Reason

 

Presenters:

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Marieke Cajal-Berman, Ph.D.

Director of Patient Strategy & Innovation

Marieke earned a doctorate in Neurosciences from the University of Paris while conducting research on brain development for the French National Centre for Scientific Research in Paris, France. Marieke brings 5 years of patient recruitment and business development experience to her new role as Director of Patient Strategy and Innovation. Most recently, she served as Research Development Director at Bioclinica, doing business development for a network of 30 sites in the US, Europe, Asia, and South America as well as for their stand-alone patient recruitment and retention services. Prior to that, she led the Neurosciences Patient Recruitment Team for Compass Research, one of the leading research centers in Neurodegenerative Diseases, enrolling 75 patients a month into an average of 25 ongoing studies.

 

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Joanna Nemeskal

Clinical Trial Marketing Manager

As a member of the Engage marketing team, Joanna assists sponsors and sites in their patient recruitment efforts by implementing various marketing strategies and campaigns such as traditional media and online advertising. “The most rewarding part of my job is being able to spread awareness for clinical trials, which ultimately improves the lives of patients and advances the future of medicine!”

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